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AI Patient Proxies: The New HCP Mistake
Why do we continue to assume that patients themselves aren’t the best source for understanding the lived experience? Historically, healthcare professionals (HCPs) have often been used as proxies for patients, based on the belief that clinical expertise naturally provides insight into patient needs. However, research has consistently shown that...
Being Heard Is Not The Same As Being Understood: The Hidden Gaps in Patient Experience
In our recent video piece, Josie shared her experience of navigating a long and uncertain path to diagnosis- one marked...
Get a Dog and Bark Yourself: Why Patients Are Forced to Advocate for Their Own Care
When Answers Don’t Come We all know the drill when we suspect something might not be quite right with our health. S...
Rare Disease Day: Finding the Soundtrack
Every Rare Disease Day is a reminder of the millions of people navigating conditions most of us will never hear of, let ...
Waking up to Sleep Disorders
I am moderating a virtual focus group late one evening, with four British GPs. We are discussing insomnia, and it is evi...
TGCT: Rare Disease Day
As part of Patient Panorama’s commitment to listen to patients, our ‘Patient Voice’ series aims to shine a spotlig...
The Power of Social Media Listening for Accessing Patient Reality
Social media. It’s becoming an integral component of our social lives: whether we’re stalking old schoolmates, stayi...
Patient Engagement in 2024: Reflecting on Fierce Pharma’s Must Haves and Predictions
As researchers, we geek out over new digital technologies & make it our mission to trial innovative research tools. ...
Complexities of Chronic Pain: How Do You Live With It?
Following on from our earlier blog exploring the difficulties in managing and treating Chronic Pain, we sat down with on...
Navigating Life’s Journey: Living with Bowel Cancer
Breaking Through Simple Appeal with Sticky Metrics and AI
As a researcher, you’ll probably be familiar with the halo effect, a cognitive bias whereby positive impressions of a ...