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Being Heard Is Not The Same As Being Understood: The Hidden Gaps in Patient Experience
In our recent video piece, Josie shared her experience of navigating a long and uncertain path to diagnosis- one marked by frustration, persistence, and the need to repeatedly advocate for herself in a system that struggled to provide clear answers. Her story will resonate with many, obviously more specifically in women’s health, but it also poi...
Rare Disease Day: Finding the Soundtrack
Every Rare Disease Day is a reminder of the millions of people navigating conditions most of us will never hear of, let ...
TGCT: Rare Disease Day
As part of Patient Panorama’s commitment to listen to patients, our ‘Patient Voice’ series aims to shine a spotlig...
The Power of Social Media Listening for Accessing Patient Reality
Social media. It’s becoming an integral component of our social lives: whether we’re stalking old schoolmates, stayi...
Patient Engagement in 2024: Reflecting on Fierce Pharma’s Must Haves and Predictions
As researchers, we geek out over new digital technologies & make it our mission to trial innovative research tools. ...
Complexities of Chronic Pain: How Do You Live With It?
Following on from our earlier blog exploring the difficulties in managing and treating Chronic Pain, we sat down with on...
Navigating Life’s Journey: Living with Bowel Cancer
A User Guide: How To Live With Epilepsy
My name is Kirsty Page, and I have epilepsy. It does seem somewhat dramatic to say it out loud like that; it feels...
Through the Eyes of a Clinical Trial Patient
At every clinical conference, investigators and the pharmaceutical industry are consistent about recognizing the importa...
Huntington’s Disease: Under the Microscope
Understanding Huntington's Disease Huntington’s disease (HD), also known as Huntington’s chorea, is an inherited ne...
Ageing and the Brain: Could Ageing be a Disease?
Ageing is thought to be our inevitable fate – an accumulation of wisdom, as well as mutations that reside in our DNA w...